By Jennifer Levesque For the Valley Advocate Burial Grid “NORD Compendium” I’ve been following Adam Kozak’s musical career ...

Affected populations: Xeroderma pigmentosum is a rare genetic disorder that makes people's skin extremely sensitive to the harmful effects of ultraviolet (UV) light. Both males and females can develop ...

After four years of fundraising, their parents hope to finish a UV-safe sanctuary behind their home in New South Wales, Australia, before Christmas "Basically, every part of life is harder for them," ...

Quietly brilliant and endlessly patient, Dr Bob Sarkany is one of the UK’s leading experts in photosensitive skin disorders. During his 16 years heading the Photodermatology Unit at St John’s ...

The family has raised more than $100,000 so far and taken out loans to build an outdoor protected space at their Phillip Bay ...

Manufacture and commercially distribute its prescription pharmaceutical SCENESSE in the European Union and the USA for the treatment of the rare, genetic metabolic disorder EPP, research and develop ...

Overexposure to light from the sun, via ultraviolet (UV) radiation, is the main cause of skin cancer. Although UV rays help produce vitamin D, they can also lead to skin damage, especially among ...

The NSW sisters live with xeroderma pigmentosum, a one-in-a-million condition where even a few seconds of UV light can burn their skin and damage their eyes. They have had to spend almost all day, ...