Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community.
My story was featured in the third plenary at the North American Cystic Fibrosis Foundation, which covered the challenges of health disparities in CF care and research, including access issues.
The Cystic Fibrosis Foundation (the Foundation) is committed to upholding high standards of integrity and transparency in working toward its mission. Individuals and organizations (including ...
The Cystic Fibrosis Foundation assembled an international multidisciplinary committee including hepatologists, gastroenterologists, pulmonologists, pharmacists, nurses, dietitians, as well as an ...
As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.
When I was diagnosed with cystic fibrosis at 43, I thought I was living on borrowed time. Now, at 75, I’ve learned that I am not defined by the odds.
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