Cystic Fibrosis Foundation

Using My Story to Advocate for the CF Community

Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community.
Cystic Fibrosis Foundation

I Still Struggle With Health Disparities That Affect My CF Care

My story was featured in the third plenary at the North American Cystic Fibrosis Foundation, which covered the challenges of health disparities in CF care and research, including access issues.
Cystic Fibrosis Foundation

Navigating Aging and Milestones With CF

As the second plenary at this year’s North American Cystic Fibrosis Conference showed, people with CF — including me — are experiencing life milestones that once felt impossible.
Cystic Fibrosis Foundation

Modulators Aren’t a Cure But They’ve Given Me a Chance at a Normal Life

I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.
Cystic Fibrosis Foundation

Learning to Move Forward After My Late Diagnosis

When I was diagnosed with cystic fibrosis at 43, I thought I was living on borrowed time. Now, at 75, I’ve learned that I am not defined by the odds.
Cystic Fibrosis Foundation

My Path to Medical Assisting With CF

I joined my local EMS squad to give back to my community, and that experience led me to pursue a career in medical assisting. Through anxiety, the pandemic, and personal challenges, I’ve stayed ...
Cystic Fibrosis Foundation

Conflict of Interest Policy

The Cystic Fibrosis Foundation (the Foundation) is committed to upholding high standards of integrity and transparency in working toward its mission. Individuals and organizations (including ...
Cystic Fibrosis Foundation

Cystic Fibrosis Screening, Evaluation, and Management of Hepatobiliary Disease

The Cystic Fibrosis Foundation assembled an international multidisciplinary committee including hepatologists, gastroenterologists, pulmonologists, pharmacists, nurses, dietitians, as well as an ...
Cystic Fibrosis Foundation

Unexpect the Expected: What I Learned After My Lung Transplant

During the 18 months I spent waiting for a double-lung transplant, I researched everything I could about the process. I asked post-transplant patients about the pain of the surgery, waking up, the ...
Cystic Fibrosis Foundation

Steph Hansen

Steph Hansen was diagnosed with cystic fibrosis at 3 years old and lives in San Antonio. Steph’s CF is caused by two nonsense mutations, which has resulted in a passion of bringing awareness to those ...
Cystic Fibrosis Foundation

CF Foundation Invests Up to $2 Million in Nosis Bio for Potential Gene Therapy Delivery Technology

Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...