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Juan and Natalia Lavato, from Argentina, had their world changed when their son, Ciro, was diagnosed with Canavan disease, a rare degenerative condition that damages nerve cells in the brain, affecting vision, speech and motor functions. After consulting ten specialists to confirm his diagnosis, they found what mattered most to them for Ciro - hope for Ciro’s future! Ciro was accepted into a groundbreaking gene therapy clinical trial at Dayton Children's Hospital. Led by Dr. Lober, pediatric neu
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This is Alana, a 6.5 year old girl who lives with #Canavan disease — a rare genetic disorder that takes away her ability to control her body Alana cannot sit, walk or hold things on her own, and experiences severe muscle stiffness and joint tension. But she feels. She understands. She loves when her parents are close, when someone sings to her, holds her hands, or takes her for a walk. Yet every day, her family and specialists fight for one simple thing — for her body to stay without pain💔 Sess
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Dallas feels nothing but LOVE every moment of every day. And that is what he gives all of us in return. Even when he is fighting for his life. Canavan Disease is a HORRIBLE diagnosis but he will never EVER have to fight alone. We love you baby Dallas 🥹 | Deputy Dallas - Our Canavan Disease Warrior
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