This lad shares what it's like living with cystic fibrosis 👏 | LADbible
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This lad shares what it's like living with cystic fibrosis 👏 | LADbible
LADbible. . This lad shares what it's like living with cystic fibrosis 👏
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Cystic Fibrosis Symptoms
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13K views · 166 reactions | CFTR modulators like Trikafta represent great progress in addressing the underlying cause of cystic fibrosis — but they do not cure the disease, and not everyone can benefit. Like Gina Ruiz, a 29-year-old living with CF who has two nonsense mutations. She shares her experience and some misconceptions about the disease. Learn more facts about CF: https://www.cff.org/intro-cf/dispelling-misconceptions-about-cystic-fibrosis | Cystic Fibrosis Foundation | Facebook
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13K views · 166 reactions | CFTR modulators like Trikafta represent great progress in addressing the underlying cause of cystic fibrosis — but they do not cure the disease, and not everyone can benefit. Like Gina Ruiz, a 29-year-old living with CF who has two nonsense mutations. She shares her experience and some misconceptions about the disease. Learn more facts about CF: https://www.cff.org/intro-cf/dispelling-misconceptions-about-cystic-fibrosis | Cystic Fibrosis Foundation | Facebook
FacebookCystic Fibrosis Foundation
4.2K views1 month ago
6.3K views · 327 reactions | Tomorrow we're thrilled to be joined at our national headquarters by Stacy Motenko, an adult living with cystic fibrosis. Check out her "Living Today" video to hear why she refuses to let CF limit her dreams. | Cystic Fibrosis Foundation | Facebook
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6.3K views · 327 reactions | Tomorrow we're thrilled to be joined at our national headquarters by Stacy Motenko, an adult living with cystic fibrosis. Check out her "Living Today" video to hear why she refuses to let CF limit her dreams. | Cystic Fibrosis Foundation | Facebook
FacebookCystic Fibrosis Foundation
6.3K views2 weeks ago
49K views · 562 reactions | Ever wanted to ask you brother, sister or friend with cystic fibrosis a burning question about their life with CF? This video project may help with some answers! | Cystic Fibrosis Trust | Facebook
3:23
49K views · 562 reactions | Ever wanted to ask you brother, sister or friend with cystic fibrosis a burning question about their life with CF? This video project may help with some answers! | Cystic Fibrosis Trust | Facebook
FacebookCystic Fibrosis Trust
49.2K views1 month ago
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Cystic Fibrosis: A Day in the Life
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findatopdoc.com
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13K views · 166 reactions | CFTR modulators like Trikafta represent great progress in addressing the underlying cause of cystic fibrosis — but they do not cure the disease, and not everyone can benefit. Like Gina Ruiz, a 29-year-old living with CF who has two nonsense mutations. She shares her experience and some misconceptions about the disease. Learn more facts about CF: https://www.cff.org/intro-cf/dispelling-misconceptions-about-cystic-fibrosis | Cystic Fibrosis Foundation | Facebook
1:01
13K views · 166 reactions | CFTR modulators like Trikafta represent …
4.2K views1 month ago
FacebookCystic Fibrosis Foundation
6.3K views · 327 reactions | Tomorrow we're thrilled to be joined at our national headquarters by Stacy Motenko, an adult living with cystic fibrosis. Check out her "Living Today" video to hear why she refuses to let CF limit her dreams. | Cystic Fibrosis Foundation | Facebook
4:41
6.3K views · 327 reactions | Tomorrow we're thrilled to be join…
6.3K views2 weeks ago
FacebookCystic Fibrosis Foundation
49K views · 562 reactions | Ever wanted to ask you brother, sister or friend with cystic fibrosis a burning question about their life with CF? This video project may help with some answers! | Cystic Fibrosis Trust | Facebook
3:23
49K views · 562 reactions | Ever wanted to ask you brother, sister …
49.2K views1 month ago
FacebookCystic Fibrosis Trust
If it’s hard to explain CF to your family and friends why you look ok on the outside but not on the inside, watch and share this video to see how lungs normally work, and how CF can affect the lungs over time. Learn more about the basics of lung care: http://on.cff.org/2rZ5tK0 | Cystic Fibrosis Foundation
2:04
If it’s hard to explain CF to your family and friends why you look o…
416.1K viewsMay 25, 2017
FacebookCystic Fibrosis Foundation
Cystic fibrosis is not just the lungs 🎤 🫳 Our social media officer Eilidh explains how CF is a life-long, life-limiting condition that affects the whole body – and like Eilidh, over 30% of adults with cystic fibrosis are also living with CF diabetes, a number that hasn't changed over the last five years. It’s 24/7. 365 days a year. You never get a day off from CF. If you'd like to get involved and share your experience, join the conversation using #notjustlungs and don't forget to tag us @cftr
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Cystic fibrosis is not just the lungs 🎤 🫳 Our social media officer Eilidh exp…
1.9K views3 months ago
FacebookCystic Fibrosis Trust
Learning for the first time that your child has cystic fibrosis can be scary. Over the past few months, we've been working with families across the CF community to put together this video and a new information pack for those dealing with new diagnosis based on their real experiences. Download the pack and more information at http://cysticfibrosis.org.uk/about-cf/new-diagnosis | Cystic Fibrosis Trust
3:03
Learning for the first time that your child has cystic fibrosis can be sc…
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FacebookCystic Fibrosis Trust
5.9K views · 163 reactions | Part 3 of the ‘Living with CF’ video series This video is a powerful illustration of how people with CF strike the balance of living with and managing their condition in their day to day lives. In this clip we meet three very inspiring people with CF: Caroline, Malachy and Helen, who share their personal experiences of balancing family life and CF. We hope you like it as much as we do... | Cystic Fibrosis Ireland | Facebook
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5.9K views · 163 reactions | Part 3 of the ‘Living with CF’ video series T…
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48K views · 669 reactions | Sometimes, the best support is tal…
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Cystic Fibrosis Trust on Reels | Facebook
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119 reactions · 65 shares | This #CFWeek, unite with us for Wear Y…
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80K views · 657 reactions | Ahead of the first anniversary of her daught…
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Six weeks ago, our colleague and friend Kayleigh Old died while wai…
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Today we are calling on Prime Minister Theresa May to ensure ac…
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63K views · 530 reactions | Every year with her dad Martin is a gift f…
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36K views · 745 reactions | Hear from David Ramsden about the de…
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Remember Tim, who we've been following on his London Maratho…
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6.6K views · 80 reactions | For 60 years, we’ve overcome challenge…
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3.5K views · 88 reactions | On Thursday night our annual Carols …
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24K views · 538 reactions | Creon is one cystic fibrosis medication eve…
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"My whole life had been changed because of my CF and that wasnt …
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Today, the National Institute for Health and Care Excellence (NICE…
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Our Youth Programme will be hosting a free online workshop fo…
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In our 2025 Your Life and CF survey, we asked young people whether t…
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