A rare disease that makes even gentle touch painful
1:16
A rare disease that makes even gentle touch painful
1.3K views7 months ago
YouTubeStanford Medicine
The Painful Reality of Living With Fragile Skin
0:48
The Painful Reality of Living With Fragile Skin
29.5K views7 months ago
YouTubeDoctor Sood
What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
1:01
What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
1.1K views6 months ago
YouTubeEB Research Partnership
Understanding Epidermolysis Bullosa and Its Challenges
0:13
Understanding Epidermolysis Bullosa and Its Challenges
277.6K views6 months ago
TikTokdarcies_story
This is Darcie.💜🦋 Darcie has a rare genetic condition called Junctional Epidermolysis Bullosa(JEB)
1:02
This is Darcie.💜🦋 Darcie has a rare genetic condition called Junctional Epidermolysis Bullosa(JEB)
4.9K views4 months ago
YouTubeDarcie 🥹
Epidermolysis Bullosa Mnemonic You’ll Never Forget 🦋
0:26
Epidermolysis Bullosa Mnemonic You’ll Never Forget 🦋
239 views3 months ago
YouTubeDermatology mnemonics + AMC🤪
What is Dystrophic Epidermolysis Bullosa?
2:50
What is Dystrophic Epidermolysis Bullosa?
450 viewsOct 6, 2025
YouTubeCheckRare
0:38
What If You Had Paper For Skin? Epidermolysis Bullosa
5K viewsSep 11, 2024
YouTubeProspective Medical Professionals
1:01
Understanding Epidermolysis Bullosa and Support for Darcie
139K views9 months ago
TikTokdarcies_story
1:06
The Children Living With a Rare, Life-Threatening Skin Disease
2.1K views7 months ago
YouTubeAmanpour and Company
0:55
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
1.6K views7 months ago
YouTubeEB Research Partnership
1:26
Gene Therapy Explained: Can We Really Fix Genetic Diseases?
1.5K views8 months ago
YouTubeThe Purple Gene Clinic
0:11
Clara nació sin piel en ambas piernas debido al síndrome de bart . Ligado a la epidermolisis bullosa. #pieldemariposa💙🦋 #padres #epidermolisisampollar #pieldecristal
900.9K views3 weeks ago
TikTokclarapieldemariposa
0:19
Raising Awareness About Junctional Epidermolysis Bullosa
3.9M viewsJan 8, 2025
TikTokbutterfly.child.3
1:01
Understanding Epidermolysis Bullosa in Children
3.3M viewsMar 26, 2025
TikTokellianas_journey
1:51
Understanding Epidermolysis Bullosa: The Realities of EB
1.1M viewsNov 20, 2023
TikTokfragileskinariana
1:01
Understanding Epidermolysis Bullosa Through Darcie's Story
6.4M views9 months ago
TikTokdarcies_story
1:02
Understanding Epidermolysis Bullosa Through Darcie’s Journey
634.8K views11 months ago
TikTokdarcies_story
1:51
Darcie’s EB Journey: Raising Awareness and Hope
591.6K views5 months ago
TikTokdarcies_story
0:20
Understanding Epidermolysis Bullosa: Ewan's Journey
1M viewsFeb 17, 2025
TikTokida.irvine8
See more
Static thumbnail place holder