For Rare Disease Day we asked Lea, a participant at Helen Keller National Center, to speak about CHARGE Syndrome. Thank you, Lea! Video transcription: Lea says: "Hi, this is Lea B. I’m 22 years old and a student at Hellen Keller National Center. Today is known as Rare Disease Day. To me, that means highlighting the unique parts of CHARGE Syndrome and spreading awareness to those that don’t have the information. CHARGE Syndrome is a rare disease, which affects 1 out of every 12,000 people in the
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FacebookHelen Keller Services
For Rare Disease Day we asked Lea, a participant at Helen Keller National Center, to speak about CHARGE Syndrome. Thank you, Lea! Video transcription: Lea says: "Hi, this is
Helen Keller Services. . For Rare Disease Day we asked Lea, a participant at Helen Keller National Center, to speak about CHARGE Syndrome. Thank you, Lea! Video transcription: Lea says: "Hi, this is Lea B. I’m 22 years old and a student at Hellen Keller National Center. Today is known as Rare Disease Day. To me, that means highlighting the ...
1.3K viewsFeb 28, 2023
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